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中文摘要: 目的:深入了解糖尿病患者家属在患者健康管理过程中的生活体验及健康需求,探索提升糖尿病患者家庭支持
的途径,从而提高糖尿病患者的健康管理水平。方法:采用目的抽样与方便抽样相结合的方法,对15位糖尿病患者家属进
行一对一、面对面的半结构式访谈,运用MAXQDA 18软件对资料进行编码、归类,采用内容分析法对访谈内容进行分析与
总结。结果:糖尿病患者家属在患者健康管理过程中的正性体验共提炼出增强健康意识、树立积极心态、注意健康饮食、加
强体育锻炼、定期监测血糖5个亚主题,负性体验共提炼出思想负担加重、生活压力增大、精力消耗增加、社交活动受限、
情绪易受波动、忽视个人健康6个亚主题,健康需求共提炼出情感支持需求、心理调节需求、角色平衡需求、社区关怀需求
4个亚主题。结论:在糖尿病患者健康管理工作中,应积极倡导家属的正性体验,推广家庭参与式健康管理模式;定期疏导
家属的负性体验,提升糖尿病患者家庭支持系统;多方正视家属的健康需求,制定有效的家庭健康管理策略,从而改善糖尿
病患者的生命质量。
Abstract:OBJECTIVE To deeply understand the life experience and health needs of the family members of diabetic patients in
the process of patient health management and to explore ways to improve family support of diabetic patients, so as to improve the lev⁃
el of health management of diabetic patients. METHODS Using purpose sampling and convenient sampling, one-to-one,
face-to-face and semi-structured interviews with the families of 15 diabetic patients were conducted. It was coded and classified by
maxqda 18 and summarized by content analysis. RESULTS The positive experience of the family members of diabetic patients in the
process of patient health management had extracted five sub-themes of enhancing health awareness, establishing a positive attitude,
paying attention to healthy eating, strengthening physical exercise, and regularly monitoring blood sugar. Negative experience extract⁃
ed six sub-themes of increased mental burden, increased life pressure, increased energy consumption, restricted social activities,
emotional fluctuations, and neglect of personal health. Health needs had extracted four sub-themes: emotional support needs, psycho⁃
logical adjustment needs, role balance needs, and community care needs. CONCLUSION In the health management of diabetic pa⁃
tients, positive experiences of family members should be actively promoted, and family participatory health management models
should be promoted; negative experiences of family members should be promoted on a regular basis to improve the family support
system of diabetic patients; effective family health management strategies to improve the life quality of diabetic patients.
文章编号:3202107012 中图分类号:R195 文献标志码:
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